I can see the trees shaking violently outside as the wind whirs and dances around them, sending a message that Winter is on its way.
Winter.
Such a cold word.
Such a painful word... for Lymies, especially.
We should all go live on an island together with a temperate climate of avg. 70F year round. I personally wouldn't mind it getting up to 90F every now and then with a nice breeze. Mmm, Summer. My favorite season of all.
Summer is also wonderful for a Lymie, considering many who lack energy or the ability to exercise can at least get some energy from a light swim. :)
Otherwise, so many of us spend our days sitting and staring - mostly at a computer. Couch-bound.
I used to sit in that chair - for months - this Summer. I have since relocated to the couch. My house doesn't have central heat, so I rely on one baseboard heater in the living room and one in the bedroom. I'll put a little space heater in the bathroom prior to showering.
The cold air and the warm water = the most painful experience. Showering becomes less frequent and I become more miserable. I can barely talk myself into getting out of the bed because of the cold air while under the warm covers.
What does it feel like? you ask.
Hmm.... You know that feeling when you're standing in the snow without clothes on and you're soaking wet? Probably not, but imagine it anyway... Mix that with the feeling of your body going numb, tingling (like poor circulation or a limb being asleep) with each impact of every tiny little drop of water or cold air. It doesn't seem to matter what temperature the water is when the air is cool, it's going to be painful. It also doesn't seem to matter how much you layer your clothes, the uncomfortable attack of irregular temperature creates unimaginable pain. A cold face + warm body = irregular temperature = pain!
Surprisingly, nothing like this experience happens (or at least far from it) when the weather is warm or you're living in a house with regulated temperatures in every room. I dream of finding an affordable home with central heat.
Unfortunately, my boyfriend is the only person making an income between us while I can't work (he waits tables), so we really can't afford it.
So here I sit.. uncomfortable and exhausted.. each and every day. I keep wishing I could just strap on my roller skates and sail off into the abyss with a smile on my face and the wind in my hair... but I shake my head and bat my eyes and suddenly, I'm just here... sitting on the couch... starting a blog on blogger.com. :\
I'm going to use this blog to vent my thoughts and talk about life, and hopefully connect with other Lymies, while informing friends/family all about the many magical wonders (yeah, right!) of Lyme Disease.
Welcome to my crazy world. Enjoy. :)
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